“Hey Lil Bird” has become my favorite thing to say…to look down at the most perfect little girl and greet her is everything. She is perfect. She is the best parts of Mick and I. She has taught us so much about each other, about people and life and most of all about love. We love her beyond measure – our hearts have melted where hers should be…we have taken on a heartbeat for her, our blood runs where hers cannot and our breath is now more full because she came into our lives. Our darling girl has shown a strength and resolve beyond our hopes and has left a large imprint on everyone at this hospital and every one of you who comes back to read her incredible adventure, forever. My life is no longer measured in days and weeks and months – it is measured in seven glorious days of knowing Miss Birdie. I am forever changed, I am forever grateful for the many lessons she has taught and the impact of each rise and fall of her chest. I have watched my husband be a father – it has been my ultimate joy to see him love Birdie, to watch him advocate for her and love all over her. His adoration is undeniable and his strength is inspirational. I love his heart for her – I am so blessed to watch him in this way and know, he is ours.
Our Lil Bird passed away last night ever so peacefully. We were given the greatest gift – eight hours with her – no tubes, no machines, no alarms, no monitors – just our darling girl in our arms breathing peacefully on her own. It was as if all she had ever wanted in life was to be right there – close to our chests, breathing in sync with us. Neither of us can ever explain those eight hours to anyone, and we won’t. That time is ours to cherish for the rest of our lives until we greet Birdie again. She is whole. She is renewed. She lives because Jesus lives and what a gift that is to us. Even if you don’t believe it or think it’s just some way for us to cope with her loss – that’s OK. I know it’s true with all my heart. I watched her leave her body and I am CERTAIN she was welcomed into the loving arms of Jesus – there is a celebration for our little girl and she deserves all of it. She is the strongest, fiercest fighter and above all else she is our little bird forever and ever.
Her impact was vast and we may never know to what extent. Her impact at the hospital alone was phenomenal. Nurses came in on their days off to visit her, her cardiologists came and wept over her, doctors who weren’t even in her case came to kiss her goodbye. What a blessing to know your child, in such a short time, could bring so many hearts together. We will be changed by this. We will be broken for quite some time. We will also be joyful in knowing our darling girl lives freely and whole.
Miss Birdie …